CF Awareness Month

May is Cystic Fibrosis Awareness Month! If you’ve been around here for any length of time, you know that CF awareness is pretty much always my MO, but this month is made for it!

Throughout the month, I’ll continue to share things about CF here and there (per usual) but what I really want to do is let YOU take over.

If there is anything you’d like to know about CF, particularly regarding my personal experiences, please ask! No question is too big or small, no topic too sensitive.

Are you curious about what life was like with three CF kiddos in our family? Do you wonder how the partner of someone with CF feels (a question for Randy)? Do you want to know more about what CF is or how it affects the body? Do you have questions about pregnancy or parenthood and CF? CF and college? CF and relationships?

I would love to answer these or any other questions you may have! I’m an open book. Please feel free to comment here or send me an email: jenny@lungsnroses.blog

I look forward to chatting with you and doing more of something I am incredibly passionate about — spreading CF awareness!

Three decades of advocacy

My sisters, Teresa (left) and Shannan (right), on Sun Up San Diego circa 1986

This video of my sisters is so precious to me.

It’s crazy to think that this was a year before I was born. Three years before the CF gene was discovered. Seven years before Shannan died.

Thirty-four years later, here we are… still raising awareness and fighting for a cure. I’m proud to be part of a family who’s been fighting so long.