Life is funny.
Shortly after I posted about my amazing PFTs, my doctor called with some news. Turns out, the X-ray she ordered “just in case” showed that I have pneumonia in my left lung. I’d been experiencing some pain in a couple areas, but no other symptoms.
To say I was confused is an understatement.
Two things that I regularly stress are that 1) CF is insanely unpredictable and 2) numbers are only part of the bigger picture.
If we had just looked at those beautiful numbers, we would never have guessed that something was brewing. Because my doctor wanted to be thorough, we were able to catch this (hopefully early) and start treatment to take care of it before it turned into something much more scary.
I’m still blown away by the fact that I could have such great PFTs while also experiencing pneumonia. That leaves me feeling even more grateful for the effects of Trikafta which have likely kept me out of the hospital.
But it’s also incredibly unnerving to feel so disconnected from my body.
For so many years, I’ve been so in tune with every feeling, every single symptom. I’ve been able to tell the moment something seems off. But this time? I truly had no clue. I’m not having the same symptoms that would previously let me know, “Hey, girl, something’s going on in here.”
Learning this new Trikafta body might be even trickier than I thought. But I’m so grateful I have the chance to, and I feel extremely fortunate to have a whole team of people helping me learn how to navigate this new normal.